Ages 4-18 · Coos County, OR county

Autism Parent Mastermind — Coos County, OR

Coos County is one of 36 counties in Oregon. A parent who has already won the argument you are about to have lives near you. You have never met them. That is the whole problem, and it is a solvable one.

Every autistic child is different and every parent is handed the same maze anyway — evaluation waitlists, an IEP meeting where you are outnumbered, a school that says it has no funding. The circle exists so you walk in with what nine other families already learned the hard way.

A monthly meeting in Coos County

1
Ten minutes: one family's current fight, stated plainly
2
What the district actually approved for someone else this year
3
Which local evaluators are taking new referrals
4
One ask each family will make this month
5
Who is going to the next school board meeting

What families in Coos County, OR ask first

Do I need a diagnosis to join?

No. Waiting for one is the point at which most families are most alone.

Is this therapy?

No. It is a working group of parents. Nobody here is treating your child.

My child is 16, not 6.

There is an age band for that. Transition-age families need a different set of answers.

From a room in Coos County to a national count

Step 1
Your circle, in Coos County, OR
Eight to twenty families who meet monthly. Local operations stay local: your meeting time, your venue, your rules, your members. Nothing about joining changes how your group runs.
Step 2
The Coos County chapter
Every circle in Coos County reports one number — how many families it speaks for — and agrees on three asks per school year. The chapter is who a school board, a superintendent or a county commission talks to.
Step 3
The Oregon coalition
County chapters send one delegate each. The coalition tracks state bills, testifies at hearings, and works alongside the structures Oregon families already have a legal right to: the state's federally funded Parent Training and Information Center under IDEA, its Protection and Advocacy agency, and its Developmental Disabilities Council.
Step 4
The national assembly
State coalitions meet quarterly. One count, one set of federal priorities — IDEA funding, evaluation timelines, restraint and seclusion, transition services, and the gap between what the law says and what a district does.

Oregon families are not starting from nothing. Under IDEA, every state has a federally funded Parent Training and Information Center; every state also has a Protection and Advocacy agency and a Developmental Disabilities Council. Those exist to be used. What is missing almost everywhere is a local group organized enough to use them together. Coos County is one of 36 counties in Oregon, and each one needs its own chapter.

If you already run something in Coos County

Keep running it. There is no merger, no renaming, no handing over your members or your money. A group that has been meeting in Coos County for years knows things no statewide organization can generate on its own. Affiliation adds two things and takes nothing: your families are counted in the Oregon total, and your ask is worded the same as everyone else’s so it cannot be answered separately.

Affiliate a Coos County group · What autonomy means here · Start a county chapter

The rules that make it work

Local groups keep local control

Your meetings, your members, your money, your name. Affiliation adds a count and a shared ask. It never adds a boss.

Nobody is diagnosed here

This is a working group of parents, not a clinical service. Families share what they did and what happened. Nobody prescribes, nobody treats, nobody assesses.

Experience is shared as experience

What one district approved is a fact worth passing on. What worked for one child is a data point, not a prescription. That distinction is enforced in every meeting.